# bee for battens
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rare diseases
'I know the current system doesn't work, I've buried two children'
3
23.4k
Feb 26th 2015, 5:30 PM
Good News
'€9,000 and more to come': Surge in donations to BUMBLEance after robbery
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10.9k
Oct 4th 2014, 9:00 AM
bee for battens
Family marks Rare Disease Day by remembering late daughter Saoirse
15
15.0k
Feb 28th 2014, 7:30 AM
bee for battens
BUMBLEance: The ambulance specially made for critically-ill kids
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14.6k
Sep 7th 2013, 11:30 AM
Survey
People affected by rare diseases asked to have their say on new plan
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2.3k
Jun 20th 2012, 7:00 AM
Voices
Column: ‘After watching my daughter die, we had to do everything’
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141
Aug 17th 2011, 7:43 AM