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Dublin: 5 °C Friday 25 September, 2020

#DEBRA Ireland

From TheJournal.ie 'There are days she's screaming so much we're all in tears' - parents of 'butterfly skin' children appeal to Dáil for help Butterfly Children

'There are days she's screaming so much we're all in tears' - parents of 'butterfly skin' children appeal to Dáil for help

EB (epidermolysis bullosa), commonly known as butterfly skin or butterfly disease, is a genetic condition which causes the skin’s various layers to blister or break at the slightest touch.

From The42 Why are the RTÉ panel, Conor McGregor and Jonny Sexton releasing butterflies this week? Come Fly With Me This post contains videos

Why are the RTÉ panel, Conor McGregor and Jonny Sexton releasing butterflies this week?

Hint: It’s all to do with DEBRA Ireland and EB Awareness Day.