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Dublin: 2 °C Saturday 14 December, 2019

#Duchenne muscular dystrophy

From TheJournal.ie 'He has a chance at life now': HSE grants access to drug that could help boys with rare condition keep walking Translarna

'He has a chance at life now': HSE grants access to drug that could help boys with rare condition keep walking Exclusive

At least five boys in Ireland have Duchenne Muscular Dystrophy, a muscle-wasting condition.

From TheJournal.ie 'He’s still walking but he’s struggling': Parents fight for access to 'life-changing' drug Muscular Dystrophy

'He’s still walking but he’s struggling': Parents fight for access to 'life-changing' drug

The families of two boys are fighting for access to Translarna, a drug that could help delay the effects of a rare muscle-wasting condition.

From TheJournal.ie Two boys fighting for access to drug that could help them keep walking

Two boys fighting for access to drug that could help them keep walking

Translarna, the only treatment for boys with a specific type of Duchenne muscular dystrophy, costs €400,000 per patient per year.

From TheJournal.ie 'A treatment that can help my son is being denied, it's agonising' Duchenne Muscular Dystrophy

'A treatment that can help my son is being denied, it's agonising'

Duchenne muscular dystrophy affects approximately one in 3,500 male births.

From TheJournal.ie 'When I was born there was no hint of any disease' Duchenne Muscular Dystrophy This post contains videos

'When I was born there was no hint of any disease'

One in every 3,500 boys are affected by Caleb’s condition.