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Dublin: 3 °C Tuesday 12 November, 2019

#EB

From TheJournal.ie Teenager living with the worst disease you've never heard of gets over seven million hits on YouTube Butterfly Child This post contains videos

Teenager living with the worst disease you've never heard of gets over seven million hits on YouTube

Jonathan Pitre has become an EB ambassador, raising $100,000.

From TheJournal.ie Column: I live with the constant pain of 'Butterfly Skin' Opinion

Column: I live with the constant pain of 'Butterfly Skin'

When Emma Fogarty was born with a rare, and extremely painful, genetic skin condition, doctors said she wouldn’t live for more than a week. After years of battling the odds, she’s determined to fight to help the next generation of suffers.

From TheJournal.ie Ryanair customers support controversial charity calendar, says airline Ryanair

Ryanair customers support controversial charity calendar, says airline

The calendar was slammed as demeaning to women by a flight attendant who gained more than 10,000 signatures on a petition against the initiative.