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Dublin: 7 °C Monday 18 November, 2019

#Emma Fogarty

From TheJournal.ie Column: I live with the constant pain of 'Butterfly Skin' Opinion

Column: I live with the constant pain of 'Butterfly Skin'

When Emma Fogarty was born with a rare, and extremely painful, genetic skin condition, doctors said she wouldn’t live for more than a week. After years of battling the odds, she’s determined to fight to help the next generation of suffers.