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Dublin: 19 °C Saturday 21 September, 2019

#Epilepsy

From TheJournal.ie This woman was paralysed on one side - two years later she walked on the Great Wall of China Honour Your Heroes This post contains videos

This woman was paralysed on one side - two years later she walked on the Great Wall of China

Sacha Dekker took part in Beaumont Hospital Foundation’s annual Honour Your Heroes event today.

From TheJournal.ie Irish researchers make discovery which may lead to epilepsy 'warning system' Epilepsy

Irish researchers make discovery which may lead to epilepsy 'warning system'

The discovery was made by researchers at the Royal College of Surgeons in Ireland.

From TheJournal.ie Simon Harris says Ireland may own its own medicinal cannabis supply in the future Cannabis Eire

Simon Harris says Ireland may own its own medicinal cannabis supply in the future

The legislation to underpin the medicinal cannabis scheme is due to be signed off on in the coming weeks.

From TheJournal.ie Man who lost teeth from epileptic seizures fined for possessing cannabis used to treat symptoms Fined
From TheJournal.ie Medical cannabis products can now be prescribed in Northern Ireland Seizures

Medical cannabis products can now be prescribed in Northern Ireland

The move has been welcomed by some, while others say the new rules are still too restrictive.

From TheJournal.ie Living with grief: 'Being here without her has been - and still is - hard work’ Epilepsy

Living with grief: 'Being here without her has been - and still is - hard work’

Each one of us will experience death or personal loss at some point so for me it seems logical to share my path to try and offer reassurance and hope to others, writes Mark Earley 18 months after the death of his wife Liane.

From TheJournal.ie Man loses bid to leave nursing home, is made ward of court Epilepsy

Man loses bid to leave nursing home, is made ward of court

An advocacy group representing the man said he has lost “his rights as a citizen”.

From TheJournal.ie Epilepsy: 'My emotions are heightened and I'm overwhelmed by difficult or upsetting situations' National Epilepsy Week

Epilepsy: 'My emotions are heightened and I'm overwhelmed by difficult or upsetting situations'

Living with epilepsy is challenging, it is a challenge for those who have the condition but it’s also a challenge for their friends and family, writes Eva-Jayne Gaffney.

From The42 'Until you've experienced epilepsy yourself, you don't understand what it's like to have no control' New Beginnings

'Until you've experienced epilepsy yourself, you don't understand what it's like to have no control'

Richael Timothy was forced to retire from Gaelic football at 21 with epilepsy, but has found a new lease of life in para-cycling.

From TheJournal.ie Pharmaceutical cannabis could reduce sudden falls for people with treatment-resistant epilepsy Alternative Treatment

Pharmaceutical cannabis could reduce sudden falls for people with treatment-resistant epilepsy

People with Lennox-Gastaut syndrome, a severe and lifelong form of childhood-onset epilepsy, were found to have benefitted from the treatment.

From TheJournal.ie How do you tell people that you have epilepsy? Irish app aims to help Trinity

How do you tell people that you have epilepsy? Irish app aims to help

Many people with the condition say they find it difficult to decide who to tell, and how to go about it.

From TheJournal.ie Epilepsy drug which has left 400 Irish children with disabilities to come under EU review today Valproate

Epilepsy drug which has left 400 Irish children with disabilities to come under EU review today

An Irish woman whose three children have disabilities will give evidence at a public hearing today.

From TheJournal.ie Epilepsy medicine linked to 'severe malformations' in children in France Valproate

Epilepsy medicine linked to 'severe malformations' in children in France

The types of birth defects attributed to the drug included spina bifida as well as defects of the heart and genital organs.

From TheJournal.ie 'I'm done for, because I can't get that for Ava': Vera Twomey makes heartfelt plea in radio interview Medicinal Cannabis

'I'm done for, because I can't get that for Ava': Vera Twomey makes heartfelt plea in radio interview

Vera Twomey met with Health Minister Simon Harris today.

From TheJournal.ie 'My epilepsy diagnosis gave me impetus to achieve as much as I can to prove all the naysayers wrong' EPILEPSY DAY

'My epilepsy diagnosis gave me impetus to achieve as much as I can to prove all the naysayers wrong'

Monday is International Epilepsy Day. Ailbhe Benson (27) reveals her personal journey with the condition that affects over 37,000 people in Ireland.

From TheJournal.ie 'I've seen this work': Mother takes fight for medical cannabis to Leinster House Ava

'I've seen this work': Mother takes fight for medical cannabis to Leinster House

A parent of a severe epilepsy sufferer said cannabidiol helped to greatly reduce her seizures.

From TheJournal.ie 'I can't believe we're coming home. It's going to be the best Christmas ever' Cannabis Oil

'I can't believe we're coming home. It's going to be the best Christmas ever'

Tristan Cahalane suffers from an extremely rare form of epilepsy and cannabis oil helps with his treatment.

From TheJournal.ie Cork family fighting for cannabis-based medicine for daughter with rare form of epilepsy Dravet Syndrome

Cork family fighting for cannabis-based medicine for daughter with rare form of epilepsy

TDs will debate medicinal cannabis use in the near future.

From TheJournal.ie 'An utter warrior': Cork family appeals for little girl to be allowed use cannabis-based medicine Seizures

'An utter warrior': Cork family appeals for little girl to be allowed use cannabis-based medicine

Some 11 types of pharmaceutical medication have failed to improve Ava Barry’s condition.

From TheJournal.ie Complaint upheld against gym over 'epileptic fit' ad Airside Bootcamp

Complaint upheld against gym over 'epileptic fit' ad

Epilepsy Ireland said the Facebook ad had caused upset and hurt to people with epilepsy and their families.

From TheJournal.ie 'I’m comfortable with my epilepsy. What is difficult are the assumptions around being a non-drinker' Opinion

'I’m comfortable with my epilepsy. What is difficult are the assumptions around being a non-drinker'

I enjoyed partying and drinking with friends but then I was diagnosed with epilepsy.

From TheJournal.ie Young man killed by his own dog as he suffered an epileptic seizure England

Young man killed by his own dog as he suffered an epileptic seizure

Trigger was then taken to a local vet to be put down.

From TheJournal.ie 'There is always the chance of not waking up after a seizure' Epilepsy

'There is always the chance of not waking up after a seizure'

Irish-led research could lead to a breakthrough in treatment for people with epilepsy.

From TheJournal.ie Epilepsy unit at Beaumont Hospital closed because of staff shortages Nurses

Epilepsy unit at Beaumont Hospital closed because of staff shortages

Vacant positions have been filled but the unit will not reopen until 21 September.

Indian groom has fit at wedding, so bride marries someone else

She says, “I do.” He says, “You’ll do.”

From TheJournal.ie "I was diagnosed when I was 14 and it was very scary. There is still no reason for it" Epilepsy

"I was diagnosed when I was 14 and it was very scary. There is still no reason for it"

A former Irish cricketer talks about her diagnosis of epilepsy.

From TheJournal.ie These men will swim in the Irish sea for 24 hours to raise money for epilepsy Gruelling

These men will swim in the Irish sea for 24 hours to raise money for epilepsy

The swim is in memory of a family friend with epilepsy who died in 2010.

From TheJournal.ie Scientists are figuring out a way to make our brains work better Insane In The Brain

Scientists are figuring out a way to make our brains work better

The results could be good news for those suffering from nervous system disorders.

From TheJournal.ie Epilepsy drug for children recalled over contamination risk Seizures

Epilepsy drug for children recalled over contamination risk

The Health Products Regulatory Authority said this is just a precautionary measure and patients do not have to return packs to their pharmacy.

From TheJournal.ie One in three would still put something in mouth of person having seizure Epilepsy

One in three would still put something in mouth of person having seizure

A new campaign to raise awareness about epilepsy is supported by Ireland’s rugby coach Joe Schmidt, whose son has the condition.

From TheJournal.ie Here's What Happened Today: Sunday News Fix

Here's What Happened Today: Sunday

Everybody’s talking about garda behaviour at the 2010 student protest, injuries at Croagh Patrick and continued violence in Egypt.

From TheJournal.ie Concern over lack of warning about flashing lights at events Health

Concern over lack of warning about flashing lights at events

People with epilepsy are asking to be informed in advance about the type of lighting at shows – so they don’t have to leave due to seizure risk.

From TheJournal.ie People with epilepsy 11 times more likely to die prematurely Research

People with epilepsy 11 times more likely to die prematurely

The risk is heightened for individuals who suffer from depression or other psychiatric conditions.

From TheJournal.ie Epilepsy Ireland 'extremely frustrated' about drug substitution Anti-epileptic Drugs

Epilepsy Ireland 'extremely frustrated' about drug substitution

The group believe generic versions of anti-epileptic drugs could lead to “breakthrough seizures”.

From TheJournal.ie HSE U-turn on funding for epilepsy sufferer 'insulting' Gráinne O'Connor

HSE U-turn on funding for epilepsy sufferer 'insulting'

Gráinne O’Connor, 27, had originally been declined funding by the HSE, even though her required treatment is not available in Ireland.

From TheJournal.ie Column: My son has epilepsy and stigma still surrounds the disease Opinion

Column: My son has epilepsy and stigma still surrounds the disease

Today marks European Epilepsy Day, a disease which is still underfunded, understaffed and underdeveloped in Ireland, writes John Verling.

From TheJournal.ie 20% of people would not employ someone with epilepsy - survey EUROPEAN EPILEPSY DAY

20% of people would not employ someone with epilepsy - survey

Many common misconceptions about epilepsy and its treatment still exist in Ireland. Here’s what you need to know.

From TheJournal.ie New gene could potentially prevent epileptic seizures Epilepsy

New gene could potentially prevent epileptic seizures

Irish researchers have discovered a new gene that could offer new hope to epilepsy sufferers.

From The42 Rough ride: Half a world away and still pedalling On The Road

Rough ride: Half a world away and still pedalling

Simon Hutchinson has crossed the half way point in his quest to cycle around the globe, but nothing is going according to plan.

From The42 Meet the Irishman in the saddle for a gruelling round-the-world charity spin Rough Ride

Meet the Irishman in the saddle for a gruelling round-the-world charity spin

Twenty-four year old Simon Hutchinson tells us about his plans to circumnavigate the world on his bike. Alone. No biggie.

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