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#Motor neurone disease

'He was full of ideas for the future': Archbishop of Dublin pays tribute to Fr Tony Coote
# RIP
From TheJournal.ie
# RIP

'He was full of ideas for the future': Archbishop of Dublin pays tribute to Fr Tony Coote

Sep 2nd 2019, 7:55 AM 16,655 Views 5 Comments

Fr Tony Coote, who suffered from motor neurone disease, died last week.

Tributes paid following death of motor neurone disease campaigner Fr Tony Coote
# RIP
From TheJournal.ie
# RIP

Tributes paid following death of motor neurone disease campaigner Fr Tony Coote

Aug 29th 2019, 8:29 AM 31,604 Views 16 Comments

Fr Coote’s Walk While You Can campaign raised hundreds of thousands of euro for research.

'A price has been put on the value of life': HSE will not reimburse drug for children with rare condition
# Spinraza
From TheJournal.ie
# Spinraza

'A price has been put on the value of life': HSE will not reimburse drug for children with rare condition

Updated Feb 25th 2019, 7:54 PM 23,227 Views 62 Comments

The HSE said the current price of Spinraza – more than €20 million over five years – is not cost-effective.

Doddie Weir: Living with MND, the crusade for a cure and the global rugby family
# Interview
From The42
# Interview

Doddie Weir: Living with MND, the crusade for a cure and the global rugby family

Jan 8th 2019, 7:30 AM 6,077 Views 4 Comments

‘The truly amazing support from the rugby community gives me a reason to get up in the morning.’

'Letterkenny to Ballydehob': Documentary follows one priest's battle with Motor Neurone Disease on his walk around Ireland
# WALKING THE WALK
From TheJournal.ie
# WALKING THE WALK

'Letterkenny to Ballydehob': Documentary follows one priest's battle with Motor Neurone Disease on his walk around Ireland

Dec 5th 2018, 6:15 AM 11,707 Views 7 Comments

Fr Tony Coote completed his journey in his own modified wheelchair.

England captain dedicates 100th cap to seriously-ill footballer husband
# Family First
From The42
# Family First

England captain dedicates 100th cap to seriously-ill footballer husband

Nov 12th 2018, 9:30 PM 47,060 Views 5 Comments

‘This one’s for my family, my husband, who are there with you when there’s a lot of lows.’

'I'm 59 and soon I won't be able to hold my grandson'
# Drink Tea For MND
From TheJournal.ie
# Drink Tea For MND

'I'm 59 and soon I won't be able to hold my grandson'

Jun 5th 2017, 7:15 AM 23,097 Views 6 Comments

Michael Clancy has Motor Neurone Disease.

South African rugby legend Joost van der Westhuizen dies aged 45
# RIP
From The42
# RIP

South African rugby legend Joost van der Westhuizen dies aged 45

Feb 6th 2017, 12:42 PM 39,655 Views 30 Comments

The World Cup-winning Springbok scrum-half had been battling motor neurone disease since 2011.

'I regret not talking to my mother about her death, don't do the same thing'
# Death Charter
From TheJournal.ie
# Death Charter

'I regret not talking to my mother about her death, don't do the same thing'

Oct 15th 2016, 8:30 PM 33,488 Views 12 Comments

The Irish Hospice Foundation wants people to talk about death, dying and grief more openly.

‘l just hope that I can keep going as long as I can without being a big problem to people... a burden I suppose"
# Motor Neurone Disease
From TheJournal.ie
# Motor Neurone Disease

‘l just hope that I can keep going as long as I can without being a big problem to people... a burden I suppose"

Feb 13th 2016, 8:30 PM 22,477 Views 12 Comments

A new study shows that people with MND can feel like a burden towards those who care for them.

Emotional scenes at Celtic Park last night as club hosted terminally ill ex-Rangers player
# Perspective
From The42
# Perspective

Emotional scenes at Celtic Park last night as club hosted terminally ill ex-Rangers player

Nov 27th 2015, 12:00 PM 50,883 Views 38 Comments

Fernando Ricksen was diagnosed with motor neuron disease in 2013.

Company director uses Linkedin to announce plans to end his own life
# Simon Binner
From TheJournal.ie
# Simon Binner

Company director uses Linkedin to announce plans to end his own life

Oct 17th 2015, 9:24 AM 22,552 Views 51 Comments

Simon Binner has been suffering from Motor Neuron disease since January.

Remember that time we were all chucking ice water over each other?
# The June Ball
From TheJournal.ie
# The June Ball

Remember that time we were all chucking ice water over each other?

Jun 22nd 2015, 9:15 PM 25,819 Views 24 Comments

There are still people fighting the ‘unwinnable fight’ against MND.

This ice bucket challenge ad has caused a lot of confusion
# Motor Neurone Disease
From TheJournal.ie
# Motor Neurone Disease

This ice bucket challenge ad has caused a lot of confusion

Jun 6th 2015, 10:20 AM 30,332 Views 20 Comments

The wording has people questioning what it means.

The wording of this charity ad has caused a lot of confusion on Twitter
# Oops
# Oops

The wording of this charity ad has caused a lot of confusion on Twitter

Jun 5th 2015, 3:31 PM 5,774 Views 2 Comments

The Motor Neurone Disease Association ad has gotten flack on the internet.

'We would have been very grateful if it had been cancer': The pain of Motor Neurone Disease
# Nicky McFadden
From TheJournal.ie
# Nicky McFadden

'We would have been very grateful if it had been cancer': The pain of Motor Neurone Disease

Mar 3rd 2015, 6:15 PM 20,980 Views 12 Comments

As the first anniversary of Nicky McFadden’s death approaches, her sister Gabrielle recalls when her family got the news of her diagnosis.

Six actors who underwent amazing transformations for movies
# New Face
From TheJournal.ie
# New Face

Six actors who underwent amazing transformations for movies

Jan 11th 2015, 6:30 PM 40,187 Views 56 Comments

And you thought you worked hard for the money…

A minister did the Ice Bucket Challenge today...any guesses?
# Ice Ice Baby
From TheJournal.ie
# Ice Ice Baby

A minister did the Ice Bucket Challenge today...any guesses?

Sep 2nd 2014, 4:35 PM 34,825 Views 34 Comments

Will this urge the Taoiseach to take on the ice? He has been nominated several times.

Will Enda Kenny do the ice bucket challenge? We asked...
# Ice Bucket Enda
From TheJournal.ie
# Ice Bucket Enda

Will Enda Kenny do the ice bucket challenge? We asked...

Aug 28th 2014, 4:15 PM 16,346 Views 51 Comments

He knows he’s been nominated but it’s uncertain whether the Taoiseach is going to soak himself.

Former Cathaoirleach of Limerick County Council dies of Motor Neurone Disease
# RIP
From TheJournal.ie
# RIP

Former Cathaoirleach of Limerick County Council dies of Motor Neurone Disease

Aug 27th 2014, 5:41 PM 18,830 Views 10 Comments

Mary Harty served as Cathaoirleach from 2011 to 2012.

Ice Bucket Challenge fund reaches €1 million mark in Ireland
# IMNDA
# IMNDA

Ice Bucket Challenge fund reaches €1 million mark in Ireland

Aug 27th 2014, 1:38 PM 12,385 Views 19 Comments

Well done everyone!

The Ice Bucket Challenge: Where does the money go?
# IMNDA
From TheJournal.ie
# IMNDA

The Ice Bucket Challenge: Where does the money go?

Aug 27th 2014, 7:51 AM 41,106 Views 53 Comments

The Motor Neurone Disease charity lets us know…

Poll: Have you done the Ice Bucket Challenge?
# Your Say
From TheJournal.ie
# Your Say

Poll: Have you done the Ice Bucket Challenge?

Aug 26th 2014, 9:05 AM 35,570 Views 147 Comments

Everyone and their granny are chucking buckets of ice water over each other. Have you?

Ice Bucket Challenge raises €680k for the Irish Motor Neurone Disease Association
# Ice Bucket Challenge
# Ice Bucket Challenge

Ice Bucket Challenge raises €680k for the Irish Motor Neurone Disease Association

Aug 25th 2014, 9:07 PM 25,795 Views 34 Comments

The clogged-up Facebook feeds have been worth it.

Benedict Cumberbatch's ice bucket challenge - can he really 'break the internet'?
# The Game Is On
# The Game Is On

Benedict Cumberbatch's ice bucket challenge - can he really 'break the internet'?

Aug 22nd 2014, 6:14 PM 36,867 Views 23 Comments

The Cult of Cumberbatch.

Michael O'Leary's ice bucket challenge is the most Michael O'Leary thing ever
# Vintage
From TheJournal.ie
# Vintage

Michael O'Leary's ice bucket challenge is the most Michael O'Leary thing ever

Aug 21st 2014, 11:25 PM 47,961 Views 49 Comments

Oh, and Denis O’Brien did one too.

Opinion: So... why are people suddenly chucking buckets of icy water over their heads?
# Ice Bucket Challenge
From TheJournal.ie
# Ice Bucket Challenge

Opinion: So... why are people suddenly chucking buckets of icy water over their heads?

Aug 21st 2014, 1:00 PM 222 Views 80 Comments

One very, very good reason.

The co-founder of the ice bucket challenge has died in a diving accident
# Corey Griffin
From TheJournal.ie
# Corey Griffin

The co-founder of the ice bucket challenge has died in a diving accident

Aug 20th 2014, 4:44 PM 46,980 Views 27 Comments

The 27-year-old drowned in the early hours of Saturday morning.

Guy with Motor Neurone Disease does an emotional ice bucket challenge
# ALS
# ALS

Guy with Motor Neurone Disease does an emotional ice bucket challenge

Aug 19th 2014, 10:00 PM 13,468 Views 5 Comments

What’s it’s all really about.

17 essential DOs and DON'Ts of the Ice Bucket Challenge
# Brrrrrr
# Brrrrrr

17 essential DOs and DON'Ts of the Ice Bucket Challenge

Aug 19th 2014, 1:00 PM 42,910 Views 25 Comments

Here’s how to make yours as epic as possible.

Roberty Downey Jr does the Ice Bucket Challenge, in typical RDJ fashion
# RDJ
# RDJ

Roberty Downey Jr does the Ice Bucket Challenge, in typical RDJ fashion

Aug 17th 2014, 12:30 PM 5,761 Views 2 Comments

While sitting in a beautiful swimming pool, obvs.

Facebook's Mark Zuckerberg was challenged to dump a bucket of ice over his head... and he did it
# Brrrrrr
# Brrrrrr

Facebook's Mark Zuckerberg was challenged to dump a bucket of ice over his head... and he did it

Aug 14th 2014, 4:45 PM 3,779 Views 2 Comments

*Like*

'If only I could still dress myself': Hard hitting Motor Neurone Disease campaign launched
# Terminal Illness
From TheJournal.ie
# Terminal Illness

'If only I could still dress myself': Hard hitting Motor Neurone Disease campaign launched

Jun 9th 2014, 3:00 PM 11,020 Views 8 Comments

In the new adverts, Jan and Paul share their stories about their terminal disease in a hope to increase support for those living with this degenerative condition.

Opinion: 'Being stuck in a wheelchair without hands or speech is such a challenge as a mother'
# Living
From TheJournal.ie
# Living

Opinion: 'Being stuck in a wheelchair without hands or speech is such a challenge as a mother'

Jun 8th 2014, 12:00 PM 279 Views 4 Comments

Emma Fitzpatrick writes about how she doesn’t care for statistics – and focuses on what she CAN do, rather than what she used to be able to do.

Longford-Westmeath TD Nicky McFadden to be laid to rest today
# RIP
From TheJournal.ie
# RIP

Longford-Westmeath TD Nicky McFadden to be laid to rest today

Mar 27th 2014, 7:15 AM 10,045 Views 4 Comments

McFadden passed on Tuesday, following a lengthy battle with Motor Neurone disease.

Gene discovery linked to why we stop feeling the clothes we wear once we’re dressed
# Memory
From TheJournal.ie
# Memory

Gene discovery linked to why we stop feeling the clothes we wear once we’re dressed

Dec 20th 2013, 6:45 AM 11,941 Views 35 Comments

Trinity College scientists work with fruit flies to make discovery about ‘habituation’ that could help with some neurological diseases.

Fundraising begins for "extraordinary" director's first feature film
# Crowdfunding
From TheJournal.ie
# Crowdfunding

Fundraising begins for "extraordinary" director's first feature film

Nov 8th 2013, 7:00 AM 8,377 Views 6 Comments

Simon Fitzmaurice has Motor Neuron Disease, and is fundraising for his first feature film, My Name is Emily.

TDs and Senators to strut their stuff on the catwalk for charity
# Strike A Pose
From TheJournal.ie
# Strike A Pose

TDs and Senators to strut their stuff on the catwalk for charity

Nov 6th 2013, 6:30 AM 6,880 Views 13 Comments

Dáil and Seanad members will go head to head with professional models for charity in the Shelbourne Hotel next week.

Column: How I live my life with Motor Neurone Disease
# Read Me
From TheJournal.ie
# Read Me

Column: How I live my life with Motor Neurone Disease

Aug 8th 2013, 7:00 AM 2,337 Views 13 Comments

Three years ago, Karl Hughes was diagnosed with Motor Neurone Disease, but he says it’s encouraged him to keep a positive mental attitude and to appreciate the time you have with your loved ones.

Stephen Hawking: We must explore space to ensure human survival
# Space Exploration
From TheJournal.ie
# Space Exploration

Stephen Hawking: We must explore space to ensure human survival

Apr 11th 2013, 8:10 AM 8,114 Views 37 Comments

The world’s leading physicist says our existence depends on finding a new planet to live on. No pressure, then.

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