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From TheJournal.ie Spinraza campaigners 'finally have hope' as HSE approves access to drug for rare disease Sma

Spinraza campaigners 'finally have hope' as HSE approves access to drug for rare disease

The drug has been approved for children with SMA Type I, II or III on “an exceptional and individualised basis”.

From TheJournal.ie 'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication Spinraza This post contains videos

'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication

About 26 children with SMA, a rare muscle-wasting condition, could benefit from Spinraza.

From TheJournal.ie 'You wouldn't tell a child they couldn't have chemo, but our son is being denied the medication he needs' Spinraza

'You wouldn't tell a child they couldn't have chemo, but our son is being denied the medication he needs'

Parents of children with a rare genetic condition are fighting for access to a potentially life-changing drug.

X Factor star discovers she's pregnant in supermarket toilet... It's The Dredge

The best of the day’s celebrity dirt.

Sam Bailey won X Factor with this emotional performance

Her winner’s song, Skyscraper by Demi Lovato, is now aiming for Christmas Number One.