# sma
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Last year
2023
Heel Prick Test
Newborn babies to be tested for Spinal Muscular Atrophy from next year
26 Nov 2023
15.1k
3
All time
sma
'Timing is key': Parents call for inclusion of rare genetic disease in newborn heel prick test
28 Jun 2022
12.2k
2
sma
Spinraza campaigners 'finally have hope' as HSE approves access to drug for rare disease
11 Jun 2019
8.7k
5
Spinraza
'We need to do right by families': Call for HSE to fund drug for rare disease after NHS approval
15 May 2019
6.3k
4
Spinraza
'We are failing these children spectacularly': Row over drug with 'exorbitant' cost rumbles on
10 Mar 2019
9.3k
13
Spinraza
'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication
28 Feb 2019
10.4k
28
Spinraza
'A price has been put on the value of life': HSE will not reimburse drug for children with rare condition
Updated
25 Feb 2019
23.5k
62
Spinraza
'You wouldn't tell a child they couldn't have chemo, but our son is being denied the medication he needs'
3 Feb 2019
19.4k
17