# SPINAL MUSCULAR ATROPHY

Last year

2023

Heel Prick Test

Newborn babies to be tested for Spinal Muscular Atrophy from next year

26 Nov 2023

15.1k

3

All time

sma

'Timing is key': Parents call for inclusion of rare genetic disease in newborn heel prick test

28 Jun 2022

12.2k

2

Dáil

'I've can't lift my arms, brush my hair, or even go to the toilet alone': Children still waiting on Spinraza drug, Dáil told

8 Jul 2020

11.5k

1

Spinraza

'We need to do right by families': Call for HSE to fund drug for rare disease after NHS approval

15 May 2019

6.3k

4

SPINAL MUSCULAR ATROPHY

'If she gets another chest infection she probably won't make it, that’s the reality'

7 Jan 2017

32.0k

16